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OrphaNews is a freely available, twice-monthly electronic newsletter presenting an overview of scientific and political news about rare diseases and orphan drugs. OrphaNews is produced by ssr软件is intended for the rare disease community. It is supported by the European Commission's DG SANTE (PP-1-2-2018-Rare 2030) and the French Muscular Dystrophy Association (AFM).

In each new issue, OrphaNews reports the latest developments in the field of rare diseases and orphan drugs, including new syndromes, new genes, basic and clinical research, national and international policy, disease surveillance, clinical trial updates, orphan drug approvals, funding opportunities, ethical, social and legal issues, news from the patient associations, upcoming events, and new publications.
OrphaNews is suited to all sectors of the rare disease and orphan drugs community - including policy makers, scientists, health professionals, patient representatives, geneticists, members of the biopharmaceutical industry and anyone interested in staying informed of important developments and new initiatives in the field of rare diseases and orphan drugs.

Disclaimer :

The content of newsletter represents the views of the Editorial Board only and is his/her sole responsibility; it can not be considered to reflect the views of the European Commission and/or the Consumers, Health, Agriculture and Food Executive Agency or any other body of the European Union. The European Commission and the Agency do not accept any responsibility for use that may be made of the information it contains.